New concepts establishing Privacy-Enhancing Identity Management are the central points of the project "PRIME – Privacy and Identity Management for Europe"...
Keywords: K.4.1 [Public Policy Issues] privacy, identity management, multilateral security, privacy, informational self-determination
06/2005 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagOBJECTIVES: To introduce some of the privacy protection problems related to genomics based medicine and to highlight the relevance of Trusted Third Parties (TTPs) and of Privacy Enhancing Techniques (PETs) in the restricted context of clinical research and statistics. METHODS: Practical approaches based on two different pseudonymisation models, both for batch and interactive data collection and exchange, are described and analysed. RESULTS AND CONCLUSIONS: The growing need of managing both clinical and genetic data raises important legal and ethical challenges...
Keywords: Genomic medicine, privacy, Confidentiality, stigmatization, discrimination, TTPs, PETs, pseudonymisation
01/2003 | Methods of Information in Medicine, SchattauerOBJECTIVES: This contribution aims at introducing the problem of privacy protection in e-Health and at describing a number of existing privacy enhancing techniques (PETs)...
Keywords: privacy, privacy enhancing techniques (PETs), HealthGrid, Grid
01/2005 | Methods of Information in Medicine, SchattauerObjectives: Current genomic privacy technologies assume the identity of genomic sequence data is protected if personal information, such as demographics, are obscured, removed, or encrypted...
Keywords: privacy, anonymity, Databases, genetic variation, genomic data, sequence analysis
01/2005 | Methods of Information in Medicine, SchattauerThe long term collection of biomaterial in biobanks for medical research is a challenge for informed consent, especially for consent forms, because they are the “legal basis” for the future use of the material...
Keywords: Ethics, privacy, informed consent, data protection, biomaterial
06/2007 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagThe TMF data protection scheme defines organisatorial and technical measures for building biobanks in a legally and ethically sound way...
Keywords: Ethics, privacy, biobanks, data protection, separation of information
06/2007 | it Information Technology (vormals it+ti), Oldenbourg Wissenschaftsverlag