The long term collection of biomaterial in biobanks for medical research is a challenge for informed consent, especially for consent forms, because they are the “legal basis” for the future use of the material...
Keywords: Ethics, privacy, informed consent, data protection, biomaterial
06/2007 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagBiobanks raise numerous questions concerning data protection, especially, how samples and data can be anonymized and/or pseudonymized, how the donors should be informed and whether the donors can give generalized consent...
Keywords: biobanks, data protection, personal data, informed consent, pseudonymisation
06/2007 | it Information Technology (vormals it+ti), Oldenbourg Wissenschaftsverlag