OBJECTIVES: To introduce some of the privacy protection problems related to genomics based medicine and to highlight the relevance of Trusted Third Parties (TTPs) and of Privacy Enhancing Techniques (PETs) in the restricted context of clinical research and statistics. METHODS: Practical approaches based on two different pseudonymisation models, both for batch and interactive data collection and exchange, are described and analysed. RESULTS AND CONCLUSIONS: The growing need of managing both clinical and genetic data raises important legal and ethical challenges...
Keywords: Genomic medicine, privacy, Confidentiality, stigmatization, discrimination, TTPs, PETs, pseudonymisation
01/2003 | Methods of Information in Medicine, SchattauerIn the USA, discrimination due to genetic information is prohibited by law. The German Federal Government undertook a step with the key points for a gene diagnostics law for legal regulation...
Keywords: discrimination, genetic exceptionalism, health purposes, physician proviso, predictive genetic tests, Prognosis
09/2008 | LaboratoriumsMedizin, Walter de GruyterZusammenfassung Seit kurzem ist in den USA ein gesetzliches Verbot von Diskriminierungen aufgrund genetischer Informationen in Kraft...
Keywords: Arztvorbehalt, Diskriminierung, genetischer Exzeptionalismus, gesundheitliche Zwecke, prädiktive genetische Tests, Prognose, discrimination, genetic exceptionalism, health purposes, physician proviso, predictive genetic tests, Prognosis
09/2008 | LaboratoriumsMedizin, Walter de Gruyter