The relative risks of genetic variants associated with complex human diseases can be efficiently assessed by the complete ascertainment of cases in a confined geographical region...
Keywords: Biology and Genetics, epidemiology, biobanks, complex disease, relative risk
06/2007 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagBiobanks are an important tool of genetic epidemiology, which investigates the role of genetic factors and their interaction with environmental factors (in a broad meaning) for the occurrence of diseases in human populations...
Keywords: biobanks, genetics, epidemiology, biostatistics, bioethics
06/2007 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagBiobanks raise numerous questions concerning data protection, especially, how samples and data can be anonymized and/or pseudonymized, how the donors should be informed and whether the donors can give generalized consent...
Keywords: biobanks, data protection, personal data, informed consent, pseudonymisation
06/2007 | it Information Technology (vormals it+ti), Oldenbourg WissenschaftsverlagThe TMF data protection scheme defines organisatorial and technical measures for building biobanks in a legally and ethically sound way...
Keywords: Ethics, privacy, biobanks, data protection, separation of information
06/2007 | it Information Technology (vormals it+ti), Oldenbourg Wissenschaftsverlag