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Peter Ihle, Urs Harnischmacher

Patient Informed Consent for Bio-Banks – Investment for the Future

Keywords: Ethics, privacy, informed consent, data protection, biomaterial

The long term collection of biomaterial in biobanks for medical research is a challenge for informed consent, especially for consent forms, because they are the “legal basis” for the future use of the material. Specific aspects like anonymization of biomaterial, scope of informed consent (use of biomaterial for a wider class of studies, a prolonged time period, a wider circle of users) and right to disclosure/right to ignorance will be discussed.

it – Information Technology (vormals it+ti), Oldenbourg Wissenschaftsverlag

Print ISSN: 1611-2776
Volume: 49, 06/2007
Pages: 345 - 351

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